...all of the above applies to the situation I'm in... no-one has any answers so it's difficult to know what's going on...
Today though I've been good, but tonight, tomorrow and so on I just can't tell you what I'll be doing... I didn't let Mummy or Daddy take any piccies of me today, I wasn't looking my best - a bit star shaped on my bed, mouth gaping open 'catching flies' type of image - not my usual cute self I'm afraid.
The steroids were started at 6am, which is when they changed my ventilation from normal 'in/out' to the high frequency oscarlation (hfo). I was needing 80% oxygen last night, which has now gone down to 30% give or take and I'm not desaturating as much (hardly at all now actually), which is a good sign. I'm not fighting the ventilation either as I'm still being paralysed, this is of course to give my body the best chance of stablising and the best chance the steriods have of working well to reduce the inflamation of my little lungs.
I could still hear what was going on around me, Daddy and Mummy stayed with me for a while. We miss each other when we're not together. I'm so glad that Daddy hasn't gone away, although now I won't get a present from the NASCAR teams! I can live with that for now.... Grandma Pat's coming over from France again this week, that's something to aim for. I'll keep you all posted as I appreciate all of your kind messages and all of the love you're sending me. I hopefully won't let anyone down, I'm working my hardest but I just can't be sure what the future holds - so don't get excited yet, there's oh so much more to do and several huge mountains to climb I'm quite sure. It's important that you all know what's going on; keep sending me those happy thoughts and words of encouragement, Mummy tells me about all your messages, it's really important to my little family of 4 (apparently I have a pet rabbit called Stuart) xxx
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Hello my darling. You will just love stuart, he is such a fluffy bunny and such a good boy just like you, you will get on very well when you get together. I hope you had a nice restful night last night and that you are fighting fit this morning so the steroids can do their job and make you well. I am coming over to see you on Tuesday, I can't wait. I will bring some books over with me and mummy can read them to you. Keep fighting sweetheart and I will see you soon. I love you millions, billions and trillions.
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